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Additional resources

We connect you to the tools and resources needed to help manage an illness and treatment. Options such as support groups can be an invaluable resource to patients living with autoimmune diseases. We encourage you to find your community as you navigate your patient journey.

Support groups, patient apps, and additional resources

This list aims to educate and connect patients to trustworthy resources that provide additional support.

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211 United Way

Supported by the United Way Worldwide, 2-1-1 is a toll-free service throughout the United States and some parts of Canada. Local community resource specialists provide confidential referrals and information on local health and human services.

http://American%20College%20Of%20Rheumatology

ACR Assistance Program

From the American College of Rheumatology (ACR) a list of prescription assistance programs.

http://Patient%20Services%20Incorporated

ACCESS Program

Advocating for Chronic Conditions, Entitlements and Social Services (A.C.C.E.S.S.®) is a program dedicated to helping find solutions to the social and economic problems that confront families facing chronic conditions.

http://Clara

Clara Health

Get Connected to the Right Clinical Trial: Clara is a fast, simple, most patient friendly way to connect autoimmune diseases patients to the newest treatment options.

http://Us%20National%20Library%20Of%20Medicine

Clinical Trials

Clinical Trial information: ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. Patients and their families can search and find available studies.

http://Goodrx

GoodRx

This website that provides comparison pricing for medications, as well as offering coupons for certain medications.

http://Healthwell

Healthwell Foundation

HealthWell Foundation is an independent, non-profit organization that provides financial assistance to certain groups of insured patients living with chronic and life-altering illnesses to help them afford their medical treatments.

800-675-8416

http://Igliving

IG Living

A magazine providing a wealth of information about immune globulin (IG). Their mission is to support the IG community through education, communication and advocacy. Providing information on insurance and insurance issues, education and studies, and legislation IG Living also has an “Ask the Expert” contact form, advocacy information, a blog, and a patient advocate.

http://Isabel%20Logo

Isabel- Symptom Checker

Understand your symptoms. Developed from the professional Isabel Differential Diagnosis Generator used by doctors worldwide, the free Isabel Symptom Checker can help you make sense of and research your symptoms.

http://Lab%20Tests%20Online%20Logo

Lab Tests Online

Lab Tests Online is an award-winning health information web resource designed to help patients and caregivers understand the many lab tests that are a vital part of medical care. The site is produced by AACC, a not-for-profit organization; proceeds from health-related advertising help support the website’s mission.

http://Gooddays

My Good Days

My Good Days serves patients struggling with chronic disease, cancer, and other life-altering conditions. They offer progressive assistance programs, offers financial support for patients who cannot afford the medications they desperately need.

877-968-7233

http://Nord

National Organization for Rare Disorders

The National Organization for Rare Disorders provides a wealth of information about rare diseases, along with information on insurance, advocacy, and events.

203-744-0100
Patient services: 800-999-6673

http://Needymeds

NeedyMeds

NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. They provide information on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons.

800-503-6897

http://Ppa

Partnership for Prescription Assistance

PPARx is sponsored by America’s pharmaceutical research companies that connect low-income, under-insured, and uninsured individuals to more than 475 public and private patient assistance programs, including 180 programs offered by pharmaceutical companies. If the maker of your prescription is not not listed you can try calling the manufacturer directly.

888-477-2669

http://Paf

Patient Advocate Foundation

PAF provides case managers who negotiate with patients’ insurers to resolve coverage and benefits issues. PAF also provides legal counseling and referral services for patients seeking to resolve debt crisis matters, denial of coverage, employment discrimination, or negotiating public assistance support with state and federal agencies.

800-532-5274
Co-pay relief program: 866-512-3861

http://Prescripprocess

Prescription Process

A non-branded treatment access resource launched by the Alliance for Patient Access. This website provides patients with information they need to understand what happens from the time a physician writes a script to the time it is dispensed at the pharmacy. It also helps to explain the prescription process and allows you to share your experience with access issues and learn from others, advocate for important legislation, and stay current with the latest news.

http://PAN%20Foundation

The Patient Access Network Foundation

The Patient Access Network (PAN) Foundation helps federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications, through over 50 disease-specific programs.

866-316-7263

http://Kxassist

RxAssist

A comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need.

http://Awareness

Support for Students

Learning Options, Resources & Tips to Help Students Succeed in School

http://Unitedstates

Your Representative

If you are looking for additional resources, consider contacting your local state representative. Your representative may have more resources and be more knowledgeable about local services that are available in your area. Your representative has a duty to serve his/her constituents.

Eager to learn more?

View our series of five online educational modules targeted to autoimmune disease patients and the general public. Find non-technical and easily understandable answers to fundamental questions regarding autoimmunity and autoimmune diseases.