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Advocacy

The Autoimmune Association advocates for equitable and sustainable access to care.

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The Autoimmune Association Advocates for Policies Important to People Living with Autoimmune Disease and Their Families

The Autoimmune Association unites critical stakeholders and leads initiatives to protect and improve key policies in the federal and state arenas that are critical to the health and well-being of people living with autoimmune disease and their families. Autoimmune Association supports an array of stakeholders that collectively deliver care and innovate for new and more effective treatments.

United States Capitol Building

The Autoimmune Association in Action

We’re fighting for legislation that protects and enables access to care.

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The Methotrexate Access Dilemma

Since the U.S. Supreme Court’s recent decision in the Dobbs v. Jackson Women’s Health Organization case, the Autoimmune Association has heard concerns from patients about their ability to access prescribed methotrexate. The decision, which overturned the 1973 Roe v. Wade ruling protecting the right to abortion under the constitutional right to privacy, has consequences for some people who take methotrexate for autoimmune diseases and for those who prescribe it.

Methotrexate is a medication often prescribed for patients with autoimmune diseases, including psoriasis, inflammatory myositis, vasculitis, rheumatoid arthritis and lupus. Separately, methotrexate, in significantly higher doses than what is prescribed for people with autoimmune diseases, may also be used to terminate a pregnancy. In states where laws banning or severely restricting the termination of pregnancies have already taken effect, some autoimmune patients are reporting difficulty filling their prescriptions for methotrexate. It is important that we understand the extent of and details about these challenges.

If you are having difficulty getting your medication, we would like to hear from you. Please contact us at hello@autoimmune.org.

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Advocacy Impact

The Autoimmune Association works with partner organizations, cosigns letters, and empowers grassroots advocates to drive change. Our reach is wide and continuing to grow!

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Our National Coalition of Patient Groups has expanded to include over 50 members!

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We are actively working to support legislation in 12 states that affects patients.

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More than 200 groups joined the Autoimmune Association's policy letters in 2021.

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Over 1000 autoimmune patient advocates ready to contact legislators.

Explore advocacy initiatives and become an advocate

Aa Doctor

Let My Doctor Decide Initiative

AA’s step therapy partnership

Policy

Help Change Policy

Contact your legislators on critical issues and make your voice heard!

Contribute to autoimmune advocacy efforts

Your gift helps us advocate for policies that put patients first and fight against policies that harm patients such as step therapy and co-pay accumulators.