Share this article
Sact Highlights

Highlights from: “Self-Advocacy and Clinical Trials”

There’s so much more to clinical trials then what you hear about. Lilly Stairs joined Autoimmune Association to inform patients and dispel myths so that that you can be your best advocate in getting the care you deserve.

 

Watch the webinar here or download the slides with the notes. You can also contact Lilly at [email protected] for more information, or follow her on Twitter at @LillyStairs 

 

Highlights include:

  • Clinical trials are safe. There are many policies and procedures to ensure safety and full consent of the participants.
  • Non-medicinal trials. Trials are vast and wide-ranging, they include observational studies, diets, and devices.
  • The placebo myth. It is rare for participants to not get treatment. In the autoimmune disease community, the treatment being tested may have already been approved but there testing the impact on another autoimmune disease.

Visit www.clarahealth.com for more information and to get help navigating the clinical trial process. Participate in ARNet to contribute to patient-powered research and get connected to clinical trial or research study opportunities.

 

Click here to view the slides & notesthumbnail of Self-Advocacy & Clinical Trials

Share this article

Join our email list

Receive the latest blog articles, news, and more right to your inbox!

  • Categories

  • Archives

Related articles you might be interested in

Autoimmune Association Image Do Not Touch

The Autoimmune Association Names New Chair of Medical and Scientific Advisory Council

The Autoimmune Association announces the appointment of Eline (Nina) T. Luning Prak, MD, PhD, as chair of the organization’s Medical and Scientific Advisory...
Autoimmune Association Image Do Not Touch

Breaking Barriers: Empowering Women of Color Living with Autoimmune Disease Through a Pilot Support Group

The journey to diagnosis for autoimmune disease is challenging, with an average of 4 to 4.5 years overall. In seeking a medical diagnosis...
Autoimmune Association Image Do Not Touch

Lee Thomas Will Deliver Keynote at the Autoimmune Community Summit

Lee Thomas, news anchor and reporter at Fox 2 Detroit TV and national vitiligo advocate, will deliver the keynote address at the third...
Autoimmune Association Image Do Not Touch

Inflation Reduction Act (IRA) Medicare Drug Price Negotiation List Announced

Today, the Centers for Medicare & Medicaid Services (CMS) released the list of medicines it will start directly negotiating within Medicare Part D....

Find more resources on autoimmunity

Learn more about autoimmunity, diagnosis tips, how to find a physician, and more.