
Highlights from: “Self-Advocacy and Clinical Trials”
There’s so much more to clinical trials then what you hear about. Lilly Stairs joined Autoimmune Association to inform patients and dispel myths so that that you can be your best advocate in getting the care you deserve.
Watch the webinar here or download the slides with the notes. You can also contact Lilly at [email protected] for more information, or follow her on Twitter at @LillyStairs
Highlights include:
- Clinical trials are safe. There are many policies and procedures to ensure safety and full consent of the participants.
- Non-medicinal trials. Trials are vast and wide-ranging, they include observational studies, diets, and devices.
- The placebo myth. It is rare for participants to not get treatment. In the autoimmune disease community, the treatment being tested may have already been approved but there testing the impact on another autoimmune disease.
Visit www.clarahealth.com for more information and to get help navigating the clinical trial process. Participate in ARNet to contribute to patient-powered research and get connected to clinical trial or research study opportunities.
Join our email list
Receive the latest blog articles, news, and more right to your inbox!
Related articles you might be interested in

New Scorecard Highlights Access Barriers Faced by People Living with Autoimmune Diseases
Let My Doctors Decide – an initiative of the Autoimmune Association to raise awareness of insurer access restrictions – has rolled out a...





How Can We Curb the Autoimmune Epidemic? New Paper Suggests a Path Forward
Both autoimmunity and autoimmune diseases are dramatically increasing in many parts of the world, notes Dr. Frederick Miller, a current NIH Scientist Emeritus...





President Biden Signs Legislation that Includes Language to Establish an Office of Autoimmune Disease Research
December 29, 2022 — The Autoimmune Association applauds Congress for passing and President Biden for signing the omnibus federal spending bill that includes...





Remembering Eula Hoover
Today, December 17, we celebrate the birthday of Eula Hoover, a founding member of the American Autoimmune Related Diseases Association (AARDA, the former...
Find more resources on autoimmunity
Learn more about autoimmunity, diagnosis tips, how to find a physician, and more.