Share this article
Sact Highlights

Highlights from: “Self-Advocacy and Clinical Trials”

There’s so much more to clinical trials then what you hear about. Lilly Stairs joined Autoimmune Association to inform patients and dispel myths so that that you can be your best advocate in getting the care you deserve.

 

Watch the webinar here or download the slides with the notes. You can also contact Lilly at [email protected] for more information, or follow her on Twitter at @LillyStairs 

 

Highlights include:

  • Clinical trials are safe. There are many policies and procedures to ensure safety and full consent of the participants.
  • Non-medicinal trials. Trials are vast and wide-ranging, they include observational studies, diets, and devices.
  • The placebo myth. It is rare for participants to not get treatment. In the autoimmune disease community, the treatment being tested may have already been approved but there testing the impact on another autoimmune disease.

Visit www.clarahealth.com for more information and to get help navigating the clinical trial process. Participate in ARNet to contribute to patient-powered research and get connected to clinical trial or research study opportunities.

 

Click here to view the slides & notesthumbnail of Self-Advocacy & Clinical Trials

Share this article

Join our email list

Receive the latest blog articles, news, and more right to your inbox!

Related articles you might be interested in

Autoimmune Association Image Do Not Touch

Teenage Advocate Empowers and Supports Other Teens

Teenager with Alopecia Creates Support Kits to Empower Other Teens, Prepares to Earn Girl Scouts Gold Award Two years ago, Gabby ran her...
Autoimmune Association Image Do Not Touch

Make a Difference During Autoimmune Awareness Month

Autoimmune Awareness Month – observed every March – aims to increase understanding and awareness of autoimmune diseases. Autoimmune diseases are a group of...
Autoimmune Association Image Do Not Touch

New Scorecard Highlights Access Barriers Faced by People Living with Autoimmune Diseases

Let My Doctors Decide – an initiative of the Autoimmune Association to raise awareness of insurer access restrictions – has rolled out a...
Autoimmune Association Image Do Not Touch

How Can We Curb the Autoimmune Epidemic? New Paper Suggests a Path Forward

Both autoimmunity and autoimmune diseases are dramatically increasing in many parts of the world, notes Dr. Frederick Miller, a current NIH Scientist Emeritus...

Find more resources on autoimmunity

Learn more about autoimmunity, diagnosis tips, how to find a physician, and more.