Search Autoimmune Association
Share this article
Capitol Hhs Rule Scaled

Autoimmune Association and 50+ Patient Groups Send Letter to Key Members of Congress on Drug Pricing Priorities for Autoimmune Patients

Washington, DC, July 30, 2021 – Autoimmune Association sent a letter to key members of Congress with the undersigned 50+ patient groups on the importance of drug pricing policy concerns, priorities, and solutions for individuals living with autoimmune disease.

At a high-level, the letter focuses on the following concerns;

  • Concerns With Foreign-Reference Pricing
  • QALY as Discriminatory
  • Access Restrictions to Medicines Now, Lack of Future Cures

We also suggest patient-focused policy solutions;

  • Counting Copay Assistance Toward Deductible, Out-of-Pocket Caps
  • Ensuring Discounts Go Directly to Patient
  • Addressing Rebates in the System, Highlighting PBM Practices

Specifically, the letter went to House and Senate leadership, House E&C, Senate HELP, and Senate Finance, and the group of 10 democrats who wrote a letter to Speaker Pelosi regarding concerns for certain drug pricing policies under HR3.

###

About AARDA
Autoimmune Association is the nation’s only nonprofit organization dedicated to bringing a national focus to autoimmunity as a category of disease and a major women’s health issue and promoting a collaborative research effort in order to find better treatments and a cure for all autoimmune diseases.

For upcoming Autoimmune Association events visit Events Calendar at www.aarda.org. For more information, visit www.aarda.org. Follow us on social media: Facebook, Twitter, LinkedIn, Instagram, and YouTube.

Media Contact:
Katie Baumer
kbaumer@aarda.org
202-800-5364

Share this article

Join our email list

Receive the latest blog articles, news, and more right to your inbox!

Related articles you might be interested in

Us Capitol Building

Autoimmune Association Leads Sign-On Letter, Supported by 24 Patient Groups

March 2022- The Autoimmune Association led a sign-on letter supported by 24 organizations calling on Congress to include an increase in its supplemental...
Us Capitol Building

Autoimmune Association Leads Sign-On Letter, 64 Patient Groups Ask Congress to Protect Rare Disease Drug Development

December 2021– In a letter sent December 14 to congressional leadership, 64 patient organizations signed on to the Autoimmune Association’s letter asking congress...
pen

Autoimmune Association Leads Sign-On Letter for 2023 NBPP Proposed Rule, Highlights Lack of Language Protecting Copay Assistance

The Autoimmune Association led a sign-on letter commenting on the HHS Notice of Benefit and Payment Parameters for 2023. The proposed rule includes...
Cigna Blog Scaled

Non-Medical Switching: A Threat to Patient Health and Wellness

By Lilly Stairs, Founder of Patient Authentic and Interim CEO, AARDA Non-medical switching is a dangerous practice that affects too many patients each...

Find more resources on autoimmunity

Learn more about autoimmunity, diagnosis tips, how to find a physician, and more.