Highlights from the National Summit on Autoimmune Disease
On March 21st, 2018 Autoimmune Association hosted a National Summit on Autoimmune Disease. Despite the inclement weather, the event went on almost exactly as planned.
Presentations were made in relation to current advocacy and research areas in the autoimmune disease community.
Below are some highlights of those presentations, and at a later date, we will be releasing videos taken from that day.
Changing the game for Sjögren’s patients: Strategies, techniques, and
implications
Steven Taylor- Chief Executive Officer, the Sjögren’s Syndrome Foundation (SSF)
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Congressional and regulatory outlook, including Medicare Part D
Stephanie Hales- Partner, Sidley Austin LLP
Emerging issues in patient access: What patients and patient advocates need to know about copay card changes, high deductible insurance plans, and access to treatment
Michael Ybarra, M.D., FAAEM, FACEP- Deputy Vice President of Advocacy and Strategic Alliances, PhRMA
Patient-powered advocacy
Lilly Stairs-Head of Patient Advocacy, Clara Health
Research panel with Dr. Elad Shron — Cancer, Autoimmunity, and Immunology
Listed below by order of appearance in the photo above from left to right.
Jaydira Del Rivro, M.D.-Staff Clinician Pediatric Oncology Branch
[button title=”Download the presentation here” icon=”” icon_position=”” link=”https://autoimmune.org/wp-content/uploads/2018/04/Del-Rivero-presentation.pptm” target=”_blank” color=”blue” font_color=”white” size=”2″ full_width=”” class=”” download=”” onclick=””]
Patrizio Caturegli, M.D., M.P.H.- Associate Professor of Pathology, Johns Hopkins University School of Medicine
Javid Moslehi, M.D., Assistant Professor of Medicine at Vanderbilt School of Medicine
[button title=”Download the presentation here” icon=”” icon_position=”” link=”https://autoimmune.org/wp-content/uploads/2018/04/Moslehi.AARDA18.Send_.ppt” target=”_blank” color=”blue” font_color=”white” size=”2″ full_width=”” class=”” download=”” onclick=””]
Michael L. Dougan, M. Director of the Immunotherapy Mucosal Inflammation Program, Massachusetts General Hospital
[button title=”Download the presentation here” icon=”” icon_position=”” link=”https://autoimmune.org/wp-content/uploads/2018/04/20180321-MDougan-AARDA.pptx” target=”_blank” color=”blue” font_color=”white” size=”2″ full_width=”” class=”” download=”” onclick=””]
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