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Am From Medically Boring To A Seizure During Pregnancy

From Medically Boring to a Seizure During Pregnancy: the Story of a Sjögren’s Syndrome and Lupus Diagnosis

When I was pregnant with my first child, I didn’t expect the labor to go perfect. I had heard enough labor horror stories to know better. However, I didn’t expect to have a seizure, either.

I’ve always prided myself in being the perfect specimen of health. I used to brag to nurses when I got my yearly physical that I was “medically boring.” I had never had any health issues—not high blood pressure, no irregular heart beat, not even as much as a weird rash. That is, until I was in my 38th week of pregnancy.

I sailed through those first 38 weeks of pregnancy, so it was no surprise that I didn’t raise any red flags. But one night, I got the mother of all headaches. It simply wouldn’t go away. Being as stubborn as I am, I waited two full days before calling the doctor. Once she heard my symptoms, she had me come in right away.

We underwent the usual routine—pee in a cup, take the blood pressure. The reaction of the nurse when she took my blood pressure was enough to bring the doctor in right away. My reading was at 190/90. I also had protein in my urine. The telltale signs of preeclampsia.

“We’re going to have to induce,” my doctor said. Ugh. I remember the labor videos of women who were induced. It was far from pleasant. I also knew it would be something completely out of my control.

Before we left for the hospital, I asked my husband Jon to wait for me while I went to the restroom. I just needed some alone time to process it all. So I locked myself in the handicapped stall and just stood there breathing.

And breathing.

And breathing.

Suddenly, my breathing became faster, and I couldn’t control it. I looked around. “Where am I?” I thought to myself. I looked around. “Ok. I’m in a bathroom. But where is the toilet paper.”

“Where’s the toilet paper,” I kept repeating out loud. “I know I’m in a bathroom, but where the hell is the toilet paper?”

I literally couldn’t see it. Turns out, right before you have a seizure, your mind plays tricks on you. Sometimes you see things that aren’t there; other times you see things that should be there but aren’t.

Fortunately, there was another woman in the bathroom. “M’am, are you ok?”

“Help me. Help me, please,” I said in a final moment of clarity. And at that moment, my left arm began to rise and I knew I wasn’t controlling it.

That’s when everything went black.

At the time, the doctors chalked it up to eclampsia, the worst-case scenario with preeclampsia. Two years later, however, another doctor diagnosed me with something more long-term: lupus.

I tested positive for lupus, Sjögren’s syndrome and Hashimoto’s thyroiditis. Turns out, these autoimmune disorders, lupus in particular, can cause seizures and preeclampsia in pregnant women. Worse yet, many women who have seizures go into a coma. That fortunately didn’t happen to me. And even more fortunate, my baby came out with no complications.

I knew I had had the Hashimoto’s, but the lupus and Sjögren’s was new. I had no idea what to expect. Sjögren’s causes severe dry mouth, eyes and skin, all of which I thought was just part of life. Fortunately, I haven’t felt any symptoms from the lupus yet. Lupus itself can be severe, causing symptoms such as joint pain and extreme fatigue.

Three years after my seizure, I found out I was pregnant again. Thankfully, my doctor was armed with information on my diseases and I delivered with few complications. However, the fear is always there. Will I have another seizure? And more importantly, will my disease manifest itself in my children?

For now, I choose to live in the present, autoimmune disorders be damned. I consider myself lucky. And with a pretty damn good labor story, to boot.

AutoimmuneMom 

About the Author
Giselle Greenwood is a former journalist. She currently lives in Houston, Texas with her two healthy and active boys, a dog named Rocco and her ever-supporting husband.

This blog post was originally published by AutoimmuneMom.com, written by Giselle Greenwood, and first published on Apr 22, 2013.

This post contains the opinions of the author. Autoimmune Association is not a medical practice and does not provide medical advice, diagnosis, or treatment. It is your responsibility to seek diagnosis, treatment, and advice from qualified providers based on your condition and particular circumstances. Autoimmune Association does not endorse nor recommend any products, practices, treatment methods, tests, physicians, service providers, procedures, clinical trials, opinions or information available on this website. Your use of the website is subject to our Privacy Policy.

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